My name’s not Rick.

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Joined 2 years ago
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Cake day: June 12th, 2023

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  • Well on iOS there’s the Apple health app. To my knowledge it stores health data locally. I’ll double check now.

    Edit: it does store health data in iCloud by default, but according to Apple its end to end encrypted

    By default, iCloud automatically keeps your Health app data, including health records, up to date across your devices. To disable this feature, open iCloud settings and turn off Health. iCloud protects your health records data by encrypting it both in storage and during transmission. If you’re using iOS 12 or later and have turned on two-factor authentication for your Apple Account, health records are encrypted using end-to-end encryption through iCloud. This means only you can access this information, and only on devices where you’re signed in to iCloud. No one else, not even Apple, can access end-to-end encrypted information.












  • I absolutely did not sign forms when I entered. It was only after I felt the threat of death that I occasionally signed things, and I did not sign anything saying they could release my information to something called MyChart.

    Sounds like a lawyer is in order then, as one of those forms may have given them the go ahead. Nobody but those present would necessarily know that you were signing under duress.

    And MyChart is simply branding of your electronic medical record. I am not aware of any limitation on converting paper charts into EMR data either. It’s all HIPAA compliant and only those treating you are able to see this data. People lose their jobs regularly for improper EMR access.

    And FWIW, I don’t think it’s especially cool to go at someone who seems to be honestly sharing their advice.



  • Search the website of the Hospital for care everywhere and see if you can find an email contact. They need not know about your experience to assist you, so be general and succinct in requesting help in opting out of the program.

    Your message will go to an IT worker, not anyone you would have interacted with clinically.

    Not going to tell you not to file a complaint, but I can’t say I’m hopeful any federal agency or regulator will be of much help since they’re now busy chasing windmills like fluoride or vaccines. Perhaps a state agency could help you, but that’s definitely a mixed bag.


  • Just an FYI, MyChart is a branded property of Epic Systems Corp, a private company based out of Wisconsin. I think you should absolutely have control over your own medical records, but as far as I know, the aspect of MyChart and Epic’s electronic medical records system that allows cross hospital sharing, called Care Everywhere was built to comply with HIPAA.

    That doesn’t leave you without any recourse though. I believe you are able to opt out of Care Everywhere. Here’s an example of a random hospital’s information page that describes how you can opt out of their sharing their EMR data outside their organization. The problem here is as far as I know, you would need to work with the old psych hospital that you had such a terrible experience with. I’d try barking up that tree first and seeing if they’ll work with you. From there you might be able to reach out to epic directly to see if they can help.

    Good luck, and feel free to ask me anything more. I’m pretty familiar with the general topic